Idaho CareLine: In Idaho, Dial 2-1-1 or 800-926-2588
Where Can I Get Information About a Particular Genetic Condition?
There are a number of resources available for people who want to learn more about specific genetic conditions. Below are some web sites that provide general medical information about specific conditions as well as sites that link to support groups for various conditions. Genetic support groups often have some of the most up-to-date and practical information available. They provide information for both families and medical professionals.
GENETICS EDUCATION CENTER
University of Kansas Medical Center
Searchable, comprehensive links to information about genetic conditions. Resources for teaching genetics, including links to human genome project information, news, lesson plans, more.
DOLAN DNA LEARNING CENTER
Cold Spring Harbor Laboratory
Basic, interactive information on a number of genetic disorders. This information includes the disorders’ inheritance, symptoms, cause, incidence, treatment.
ALLIANCE OF GENETIC SUPPORT GROUPS
International coalition of individuals, professionals, and genetic support organizations that provides you with connections to support groups, educational resources, recent research information, and other informative web sites.
MARCH OF DIMES
Information on specific birth defects and by helping you find other resources as well as appropriate support groups.
Up-to-date articles on various genetic conditions for health care providers. Once at the home page, choose Gene Reviews and type in the name of the genetic condition.
Links to information on a variety of genetic conditions as well as background information on genetics, genetic services, genetic testing.
NATIONAL ORGANIZATION FOR RARE DISORDERS (NORD)
Federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, service.
GENETIC AND NEWBORN SCREENING RESOURCE CENTER OF THE UNITED STATES
Provides information and resources in the area of newborn screening and genetics to benefit health professionals, the public health community, consumers and government officials.
Genetics Clinics - How can I find an Idaho genetics specialist or genetic counselor?
General Genetics—Pediatric and Adult
Genetic Services Program
Department of Health and Welfare, Boise, ID
Genetics Board Certification: Genetic Counseling, General Genetics
Appointments: Telephone: (208) 381-7339
These Clinics Provide Services In: General Genetics and Metabolics
Questions: Contact clinic staff at (208)381-7339
Prenatal Genetic Counseling
St. Luke’s Maternal Fetal Medicine
Perinatal Services, Boise, ID
Genetics Board Certification: Genetic Counseling
Other Board Certification: Obstetrics-Gynecology
Appointments: Telephone: (208) 381-3088 Fax: (208) 381-4314
This Clinic Provides Services In: Prenatal Diagnosis
Questions: Contact Heidi Nagel MS CGC (208) 381-3088 email@example.com or Jennifer Eichmeyer firstname.lastname@example.org
Cancer Genetic Counseling
St. Luke’s Mountain State’s Tumor Institute Appointments: Telephone (208) 381-2734 Fax: (208) 381-3276 Questions: Contact Jennifer Eichmeyer MS (208) 381-2734 email@example.com
St. Alphonsus Cancer Treatment Center Prevention, Early Detection and Genetics Program Appointments: Telephone: (208) 367-4222 Fax (208) 367-4164 Questions: Contact Debra Mercy MS, CRNP, AOCN (208) 367-2273 or 1-866-208-3677 firstname.lastname@example.org
Genetic Service Providers Outside Idaho
These provide searchable databases of genetic clinics and genetic counselors throughout the country and around the world.
On the home page, choose the clinic directory button.
National Society of Genetic Counselors
On the home page, choose "Find a Counselor."