About Children and Youth with Special Health Care Needs

To enable children and youth with special healthcare needs to receive high quality, family-centered, integrated health services by providing resources about access to care, medical and dental homes, care coordination, and healthcare transition.

Definition of Children and Youth with Special Health Care Needs

Children and Youth with Special Health Care Needs (CYSHCN) encompasses a diverse group of children with health conditions. This can include:

  • chronic health conditions (ex. diabetes)
  • medically complex health issues (ex. cystic fibrosis)
  • developmental disabilities (ex. autism spectrum disorder)
  • behavioral or emotional conditions (ex. bipolar disorder)
  • require health and related services of a type or amount beyond that required by children generally
Happy girl with Downs Syndrome standing in a field
CYSHCN Statistics
14.2
Million children and youth in the US who have special healthcare needs
19.2%
of Idaho's children and youth who have special healthcare needs

Six focus areas of CYSHCN

3. Dental home: Oral healthcare that is delivered in a comprehensive, continuously accessible, coordinated, and family-centered way
4. Care coordination: A family-centered, assessment-driven, multidisciplinary activity that is focused on meeting the complex health care needs of children and youth
6. Training and resource organizations: Find resources and upcoming trainings here

Upcoming events and trainings  

Down Syndrome Booklet

PANDAS/PANS FAQ Sheet